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#10
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| "Dave Bell" <dbell[at]TheSPAMFREEBells.net> wrote - quote - > As I have used a pinhole, the trick is to move it around, watchign for an
Defects that "jump" are usually lenticular. Corneal variations are smooth,> abrupt change in the image you see. If you have a crease or other defect > in the cornea, the pinhole should cause a jump, from the normal, main > position of the LED or text to the displaced position, as you cross the > defect. lenticular variations are often discontinuous. -MT |
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#9
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| "Simon Dean" <sjdean[at]simtext.plus.com> wrote - quote - > Sooo.... Corneal Diplopia though, isn't astigmatism though
Technically it is astigmatism, literally "lack of a point".But classic "astigmatism" assumes just two major meridians ("football" shape) so glasses are limited to a best approximation of the real surface. Use Google to search (images) on "corneal topography" and you'll see that the normal corneal surface is much more complex than a football. Two areas of cornea will have different curvature, but more importantly they may not be exactly "co-axial". If they aren't coaxial, their images form in slightly different places, eg diplopia. - quote - > I am obviously wondering now about whether any of this could be translated
Very possible. It the pinhole eliminates it, bingo.> to my previous issue, of black text on white paper. Could the white paper > be blurry and ghosting (over the text) instead of the text blurring? Will > the LCD monitor be kicking out so much light and the contrast so great > compared to paper, that we have a "light on gets rid of corneal diplopia" > situation? If so, then brighter room lights are about the only home remedy. Gas perm contacts might work exceedingly well. Low-dose pilocarpine (or Alphagan-P) are sometimes used to stimulate miosis. -MT |
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#8
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| On Thu, 5 Jul 2007, Simon Dean wrote: - quote - > > Corneal diplopia should be more noticeable in dim light with hi-contrast, > > bright targets on a dim background. > > > So, have you made a pinhole and tried it yet? > > F'in A. Give that man a star. Pinhole, though difficult to see through, > seems to work quite well. > Staring at an LED on my computer, it goes away in bright light, comes > back when the lights are off, looks fine through a pinhole. > Sooo.... Corneal Diplopia though, isn't astigmatism though and you don't > fix it with glasses? I'll have to look at what happens when looking > through a pair of sunglsses. As I have used a pinhole, the trick is to move it around, watchign for an abrupt change in the image you see. If you have a crease or other defect in the cornea, the pinhole should cause a jump, from the normal, main position of the LED or text to the displaced position, as you cross the defect. Dave |
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#7
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| Mike Tyner wrote: - quote - > "Simon Dean" <sjdean[at]simtext.plus.com> wrote
F'in A. Give that man a star. Pinhole, though difficult to see through,> > This worries me now. I've never tried pinholes, and as you say, monocular > > diplopia can usually be explained by ocular abberations? > Yes. If you're younger, it's usually corneal and if it's acquired after 50, > it's probably lenticular. > > fact he's talking about stuff happening in the back of the brain makes me > > wonder if he really suspects that my vision issues are neurological - but > > that he just doesn't know what they are. > Well you've described a couple of symptoms that are difficult to explain > optically (text jumps out, every ripple more pronounced) but I'm pretty sure > the diplopia is more mundane. > > eg, white credits on a black screen, or the green dots on a "volume > > control" of a tv, a a small bright power led on a computer or similar. > > That to me is when it's noticable. > Corneal diplopia should be more noticeable in dim light with hi-contrast, > bright targets on a dim background. > So, have you made a pinhole and tried it yet? seems to work quite well. Staring at an LED on my computer, it goes away in bright light, comes back when the lights are off, looks fine through a pinhole. Sooo.... Corneal Diplopia though, isn't astigmatism though and you don't fix it with glasses? I'll have to look at what happens when looking through a pair of sunglsses. I am obviously wondering now about whether any of this could be translated to my previous issue, of black text on white paper. Could the white paper be blurry and ghosting (over the text) instead of the text blurring? Will the LCD monitor be kicking out so much light and the contrast so great compared to paper, that we have a "light on gets rid of corneal diplopia" situation? Cheers Simon |
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#6
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| "Simon Dean" <sjdean[at]simtext.plus.com> wrote - quote - > This worries me now. I've never tried pinholes, and as you say, monocular
Yes. If you're younger, it's usually corneal and if it's acquired after 50,> diplopia can usually be explained by ocular abberations? it's probably lenticular. - quote - > fact he's talking about stuff happening in the back of the brain makes me
Well you've described a couple of symptoms that are difficult to explain> wonder if he really suspects that my vision issues are neurological - but > that he just doesn't know what they are. optically (text jumps out, every ripple more pronounced) but I'm pretty sure the diplopia is more mundane. - quote - > eg, white credits on a black screen, or the green dots on a "volume
Corneal diplopia should be more noticeable in dim light with hi-contrast,> control" of a tv, a a small bright power led on a computer or similar. > That to me is when it's noticable. bright targets on a dim background. So, have you made a pinhole and tried it yet? -MT |
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#5
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| Mike Tyner wrote: - quote - > "Simon Dean" <sjdean[at]simtext.plus.com> wrote
Incidentally, any vertical monocular diplopia I have, is usally when im> > The monocular vertical diplopia he says is unexplainable, it's usually > > caused by something happening in the back of the brain when it's > > processing images, though what it is, no one knows. > I thought yours disappeared with a pinhole? If it disappears thru a pinhole, > it's optical, not neurological. > Corneal diplopia disappears with a gas-perm contact, lenticular does not. looking at a bright light on a dark background. eg, white credits on a black screen, or the green dots on a "volume control" of a tv, a a small bright power led on a computer or similar. That to me is when it's noticable. Cya Simon |
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#4
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| Mike Tyner wrote: - quote - > "Simon Dean" <sjdean[at]simtext.plus.com> wrote > > The monocular vertical diplopia he says is unexplainable, it's usually > > caused by something happening in the back of the brain when it's > > processing images, though what it is, no one knows. > I thought yours disappeared with a pinhole? If it disappears thru a pinhole, > it's optical, not neurological. > Corneal diplopia disappears with a gas-perm contact, lenticular does not. This worries me now. I've never tried pinholes, and as you say, monocular diplopia can usually be explained by ocular abberations? The fact he's talking about stuff happening in the back of the brain makes me wonder if he really suspects that my vision issues are neurological - but that he just doesn't know what they are. Cya Simon |
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#3
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| "Simon Dean" <sjdean[at]simtext.plus.com> wrote - quote - > The monocular vertical diplopia he says is unexplainable, it's usually
I thought yours disappeared with a pinhole? If it disappears thru a pinhole,> caused by something happening in the back of the brain when it's > processing images, though what it is, no one knows. it's optical, not neurological. Corneal diplopia disappears with a gas-perm contact, lenticular does not. -MT |
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#2
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| In article <5evjhgF39hql8U1[at]mid.individual.net> , Simon Dean <sjdean[at]simtext.plus.com> wrote: - quote - > RT wrote:
Why thanks! > > In article <5ev87oF39sn19U1[at]mid.individual.net> , Simon Dean > > <sjdean[at]simtext.plus.com> wrote: > I've just read it all.... What a load of crap... :-) ![]() - quote - > Im in no way trying to suggest I have MS, or even wishing for it, but,
I completely understand that sentiment. I went through years until I was> to me there would be a great thing in having a diagnosis of "something". > To me, it would be closure. diagnosed. It certainly helped to explain many things I had been experiencing and helped to justify to others that I HAD something when I was afraid that it was all in my head. It was a relief at first. But, as I mention below, it can also become a catch all for anything that's wrong. I have spent almost as many years trying to prove I don't have MS (unfortunately the tests always come back positive). - quote - > How can not wanting this though, be reconciled with wanting to be on top
There is more than one way to skin a cat. I may not be following the> of it? present "conventional" method (that has really only been around for a decade--that's how long MS medications have been FDA approved), but I feel that I am on top of it. In fact I was entered in a study for people with MS whose MRIs show improvement (ie. lesions getting smaller or disappearing). I see an acupuncturist regularly, watch my diet and exercise. I have learned to cope around my symptoms--which are mostly visual and fatigue. I don't take medications. I do have an MRI every year or so (that was the deal I made with my doctor whose job it is to prescribe the most advanced medications available.) Others may chose to follow the conventional protocol. That's each person's prerogative and everyone has to do what they feel is right for them. There is no single approach, I believe. - quote - > I think I'd like to make sure Im on top of it. I think that's all. I
It really depends on your symptoms. An MRI is a photograph, it doesn't> mean, I've had one MRI, I'd like maybe to keep it in check, just see > what's happening over the next couple of years so that if I did have > more symptoms, I hope it would be fairly easy to get a referral from my doc. spit out a diagnosis. Sometimes there are no physical abnormalities to explain symptoms. Sometimes the more we worry about something being wrong, like seeing white spots on an MRI, the more likely we are to experience adverse symptoms and/or feel sick. If you have insurance or if you can afford to pay for MRIs every year, they are not going to physically harm you--but on the other hand focusing on the scans may be deflecting your attention from what's really going on and addressing the true cause. - quote - > I get the feeling that if I was to "break the cycle" there, but then
It is really hard not to worry about what other people think of you,> developed symptoms in four, five years time or something, that it would > be immensely difficult to get anyone to listen. including (especially?) doctors, but you really have to do what is best for yourself in consultation with a doctor you trust. Have you ever kept a journal of your symptoms and when they happen? Why do you think a particular symptom may be happening at a particular time? Sometimes there are emotional things we don't want to deal with and our bodies make us feel sick or in pain so we concentrate on those symptoms instead. That doesn't mean that those symptoms aren't real, that there aren't things that are physically wrong like disturbed vision or pain, but just that our minds are incredibly clever in keeping us focused on our bodies when it is our psyches that need healing Those kinds ofchronic disturbances cannot be explained with an MRI scan. Best of luck to you. You'll figure it out and make the right decision for yourself. -- ~RT |
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#1
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| RT wrote: - quote - > In article <5ev87oF39sn19U1[at]mid.individual.net> , Simon Dean
I've just read it all.... What a load of crap... :-)> <sjdean[at]simtext.plus.com> wrote: > > Thoughts? Would it be worth pushing for the MRI? > > > Something tells me I'll go crazy if I dont.... I mean, Im probably > > too analytical for my own good, so start noticing any little > > abnormality. Like, just above, when I typed forth instead of worth > > - and that's not a slip of the fingers. Or when I wrote Sometimes > > instead of Something. > My opinion, for what it's worth Nah, it's great. You've even answered one of the things I was thinking. Im in no way trying to suggest I have MS, or even wishing for it, but, to me there would be a great thing in having a diagnosis of "something". To me, it would be closure. It's a difficult thing for me to talk about, because any of my symptoms are probably so non-descript and pale in significance compared to anyone who has been diagnosed with MS. But I do have a tendency to believe that I am unusually sensitive and pick up on anomalies and want an answer. Im still seeking a referral to an ENT specialist to find out why after six years, my throat is still dry and my sinuses are still congested. - quote - > I have MS and the first place affected was my vision. I first noticed
Some people can read that, and draw parallels in anything. If I wanted I> n 1994 that the sun reflecting off objects, like grass, looked > different--somehow shinier than usual. could read that and think "vision first", that's common with me! Hopefully I don't think like that. I experience something, and look to medical science to explain it. Just a shame someone mentioned demylination - then I start thinking, OK, vision, sometimes my words mess up, sometimes I bump into things while walking, drop things Im carrying, and I already have another autoimmune condition called hypothyroidism. But then the rationalist in me says OK, I've never dropped a pint, everybody muddles their words up, and so what I bump into things, I busted my knee up, maybe Im just getting used to walking again - I can drive fine. Still there's something at the back of mind thinking, am I just being too sensitive? Is there something lurking there? How can I make sure if there is something there, then I can be on top of it? By the way, my vision when Im outside, things appear more washed out and greyish - a pair of sunglasses brings everything back to life. so for me, my vision. It's duller but brighter. - quote - > The shine popped out at me. After a long process of going to
So an MRI with no issues doesn't indicate you don't have it, and even if> opticians and being over-prescribed etc. etc. I made it to a > neurologist, an ophthalmologist and a neuro-ophthalmologist because I > started to lose my central vision. Everything in the center of my > vision appeared gray--I could only see in the peripheries. The gray > center got larger and larger until I was almost blind. I was > diagnosed with optic neuritis, even though my optic nerve wasn't > visibly swollen. I had an MRI done at the time, it showed no > abnormalities. there are abnormalities, doesn't indicate you do. Just symptoms then? Did your MRI show any white spots? I think I had about ten dots spattered through my brain. Doc reckoned it could be some blood vessels and gave a fancy name for it. - quote - > I had big areas of empty in my visual fields tests, esp. when I first
(Note to self: there can be many vision issues with MS can't there?)> came into the office. I failed that other test with the little > ballerinas and beach balls in a 3D box (what was that???) and my > evoked potentials showed abnormalities. - quote - > I also had color perception problems with the color red. The optic
I'll tell you my first answer... jump for joy. My second answer,> neuritis resolved itself without any intervention after about 4 > months and has come back twice since. At the time, I was told that I > had a 10% chance of developing MS, but that it was really unlikely. > Besides optic neuritis, I was diagnosed with Uthoff's Phenomenon, > which I still suffer from when over heated--or even after moderate > exercise like walking to the store.My vision becomes somewhat blurry > and contrast is affected, as if I'm seeing twilight. Right now it > only affects my right eye. I was RXed with MS in 2001. I had lesions > on my spine. I took MS medications only for a few years but I stopped > due to the side effects. My most recent MRIs show improvements and > lesions completely healing in some cases even though I haven't taken > the standard MS meds in about 4 years. > My first question to you is--what would you do if something was > "found" on your MRI? probably nothing, unless someone gave me a definitive answer, then I'd probably say "Ok, good, something we can work on". My answer now? Not sure, I have just read what you say further on about being labelled as your disease and anything that happens is a symptom of that. - quote - > We have all this advanced diagnostic abilities now and doctors are so
I hope Im not like that. All I know is how Im feeling, what my reactions> quick to offer medications now (ie. I've been told that if MS meds > existed in 1994 when I had my first symptoms I would have been > prescribed them even before an MS diagnosis in order to ward off my > first big relapse which came 7 years later--all that makes me think > of is the 7 years of side effect hell I would have undergone with no > guarantee of 1. developing MS or 2. preventing any relapses). > Because of this diagnostic ability today, many things are "found" > that are not causing symptoms, yet patients and doctors lock onto > them and then feel obliged to "treat" them. are, and what I do, then look towards medical science to try and explain it. Trouble is, most of what I have is either, unexplainable, or the answer I have didn't actually explain the situation. Like sometimes, when i don't take my thyroxine, I feel more alert. Seems an odd thing to do, to treat someone for MS when they havent been given a diagnosis - just in case. Thing is did they know you had it and were just being kind, or were they just unsure? And given how reliable everything is, how can you be sure you actually even have it now? I guess our whole society is geared more towards preventative medicine. Unfortunately that can't really work can it, unless you have some idea of just what you're supposed to be preventing? (Note to group: I can sense my politicalness rearing up, and I'll start being unkind to various people, so Im quitting there) - quote - > Or alternatively, as so often happens, a person gets labeled as their
This is the bit of your post that is so true. It must be awful for you> disease and then everything that happens to them becomes a symptom of > the disease and may not be treated correctly. For example, numbness > in my hand is dismissed as an MS symptom rather than the doctor > looking into a pinched nerve or a blood clot, carpel tunnel or > something else. Unfortunately MS doesn't preclude having other > diseases (too bad--don't you think MS sufferers should at least be > exempt from cancer?) to fight the doctors at every stage. And I think I have it bad! How can not wanting this though, be reconciled with wanting to be on top of it? - quote - > So, basically the information an MRI can provide works both ways. You
I think I'd like to make sure Im on top of it. I think that's all. I> need to ask yourself why you need it done, and if something was > found, what would you do about it? Are you prepared to "treat" > something that you may not have or doesn't actually cause symptoms? > Because, trust me, sometimes the cure IS worse than the disease. mean, I've had one MRI, I'd like maybe to keep it in check, just see what's happening over the next couple of years so that if I did have more symptoms, I hope it would be fairly easy to get a referral from my doc. I get the feeling that if I was to "break the cycle" there, but then developed symptoms in four, five years time or something, that it would be immensely difficult to get anyone to listen. Cheers Simon |
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